THE SCINTILLON INSTITUTE DEDICATES ITS END-OF-YEAR NEWSLETTER TO OUR CAUSE

Today it ends 2016 , a year that has been a turning point in our lives, and especially in those of our children. It was on January 5 of this year, when we telephoned Dr. Stuart Lipton, a renowned researcher and doctor whose research was focused on finding a treatment for people with a deletion or mutation in the MEF2C gene.

To our surprise, it was he himself who immediately answered the telephone, and from that moment a door opened to hope for the future of our children. Since then, the exchange of mails and calls was continuous, and the fact that the few cases diagnosed and the economic barrier were the only things that could stop this important research, led us to create this association today you belong to.

Since it was founded in April, we have not stopped receiving signs of support and affection. Thanks to you, 24000 euros have already reached the laboratories of Dr Lipton. And it is thanks to you that the end-of-year newsletter of the Scintillon Institute has been dedicated to our cause this year with the aim of spreading it and requesting collaboration there in the United States. Here we show it to you as they have sent it. We have been very excited about this detail and we want to share it with all those who make it possible for this fight to be stronger and stronger.

Thank you with all our heart, and Happy Year 2017. We start next year full of optimism and enthusiasm and with a clear objective: a treatment for MEF2C children. Happy New Year FAMILY!

MEF2C Association

We look forward together