ON DECEMBER 6 THE MEF2C ASSOCIATION WILL VISIT DR. LIPTON IN SAN DIEGO
Today we want to inform you that all your collaboration has reached its destination again, Dr Lipton and his team have received our second donation. We have got grateful words from San Diego, words telling us that the MEF2C Syndrome research is benefiting directly from our generosity, which is none but yours. Knowing that with our donations we are making it possible for the investigation of the MEF2C Syndrome to advance excites us very much and pushes us to continue fighting without rest.
As we told you some time ago, the treatment they are working with has already been tested on mice and cell models, and as the results are good, they will soon be published in a scientific journal. All our hope and confidence is placed in this prestigious doctor and in his research, that is why we have felt the need to meet him in person for some time and to be told all his advances and perspectives of the future. Today we want to share with you the emotion we feel because next December 5, making a little economic effort, Celia and her family will travel to San Diego (USA) to make that dream come true. Dr. Lipton and his team will receive us on December 6th in their lab, where they will show us all the results they have so far and the doctor will examine Celia. We are very excited to be able to meet him and see in person the progress of this important research. In addition, we will also be able to show him personally the progress that our little Guillem, Laura, Lisa and Celia are making, so it will be a beneficial trip for all the members of the association.
Both we and they are excited with our visit and they are helping us a lot with the planning of the trip. In addition to taking time to meet us there, as friendly and accessible as ever, the doctor has looked for accommodation near his laboratory and is available for anything we need.
More than a year ago, the families that formed this association did not know each other and we felt very alone. Moreover, we thought it was an untreated disease and all we could do was stimulation therapies. One day, we discovered that there was a laboratory investigating the syndrome of our little ones and decided to start this project. In just 7 months, we have raised more than 24,000 euros that have been entirely directed to a research that is giving good results. Now, this doctor and his team will welcome us to explain in detail the progress of the research and future prospects. With all this, we can only be fully grateful to Dr Stuart Lipton, his team, and each and every one of you. Thanks sincerely! Every day closer and closer to a treatment for our children!
MEF2C Association
We look forward together
