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Lisa’s family visits Guillem and Celia in Valencia

We had no better way to start Easter holidays! Yesterday we had the opportunity to meet Lisa and her beautiful family, who are spending a few vacation days in Spain.   We cannot explain in words how exciting it is to meet other children suffering from the same condition, the connection between families is immediate, because what links us is the most important: our children. We share experiences, illusions and above all hopes placed in that research that, although miles away,...

6 November, 2017By NewsRead more...

Great weekend in the XI Primer Toque Tournament

Good evening! After these holidays we want to tell you what was experienced in the XI Primer Toque Tournament where our Association was present. Many people came to our stand taking an interest in our cause and showing us their support. In addition, those attending the tournament have wanted to collaborate with the solidarity raffle for the benefit of our association and AFANIAS Castellón.   They were two fantastic days in which sport and solidarity reigned. We want to thank Primer...

6 November, 2017By NewsRead more...

Solidarity concert of Pau Alabajos for MEF2C

Good eveningt! Next Friday we are waiting for you in the dELUXE pop club (Valencia) where the great Pau Alabajos is giving a solidarity concert for the benefit of our cause. You can buy your tickets in advance for € 6 and Row 0 in: Pau Alabajos in solidarity concert and also at the box office for € 8.   We are thrilled by every sign of support we receive. Moreovoer, with the importance of music for our children, it is...

6 November, 2017By NewsRead more...

New points of sale of the solidarity bracelets in Toledo

Today we want to announce that in Toledo, hometown of our little Laura, there are many people interested in collaborating with this hopeful cause and giving it visibility. Thus, Centro Crecer, Santa Barbara Stationery and Pilook Hairdresser´s, have just become new points of sale of our solidarity bracelets in this city.   We are very happy and grateful for the support we are receiving from all the centers and shops, as their collaboration brings us closer to our goal,. We would...

6 November, 2017By NewsRead more...

CD. Castellón supports our cause once again

This morning we had the pleasure of coming back to Castalia stadium in Castellón, where once again we felt the support of C.D. Castellón. When we stepped on the field, we revived the memory of May 2016, when we started with the Association and the support of this great club was so important in those first moments. It´s always been that way.   On this occasion, the players have given their support to the 2nd Urbanthlon, the fun race organized by...

6 November, 2017By NewsRead more...

WE ARE ALREADY ON INSTAGRAM!

As you know, in addition to our main goal which is getting treatment for our children, we also have the objective of giving maximum visibility to this rare disease, in order to facilitate diagnosis and support families who receive it. Today, social networks help us make this goal easier, so we wanted to join Instagram, as well as Facebook and Twitter of which we were already members. Here we copy the link to our account, we would love you...

16 January, 2017By NewsRead more...

INTERVIEW WITH JESES, CELIA’S DAD, IN COPE CASTELLÓN

This morning Jesus, Celia's father, had the opportunity to speak about our association and its objectives in Cope (radio broadcasting) Castellón. Thanks to Raúl Puchol for the fantastic interview that has allowed us to explain our project and Cope Castellón for giving us visibility. In addition, this morning in the same radio they have also been interviewed Eva Gallén and Begoña Campos, director of magazine And Magazine Castellón. Begoña has been deeply interested in our cause and we have provided...

2 January, 2017By NewsRead more...

THE SCINTILLON INSTITUTE DEDICATES ITS END-OF-YEAR NEWSLETTER TO OUR CAUSE

Today it ends 2016 , a year that has been a turning point in our lives, and especially in those of our children. It was on January 5 of this year, when we telephoned Dr. Stuart Lipton, a renowned researcher and doctor whose research was focused on finding a treatment for people with a deletion or mutation in the MEF2C gene. To our surprise, it was he himself who immediately answered the telephone, and from that moment a door opened...

31 December, 2016By NewsRead more...

MEF2C ASSOCIATION PRESENT IN THE CHRISTMAS MARKET OF SANTA CLARA SQUARE (CASTELLÓN)

Good Morning! Today and tomorrow morning we will be part of the Christmas market of Santa Clara Square (Castellón). During these days, two of the stands of this traditional market, have been assigned to various NGOs or Associations registered in the City Council. We thank the City Council of Castelló de la Plana for this gesture and for showing their support to causes that are so needed as ours. In addition, our stand counts this time with a novelty: these...

30 December, 2016By NewsRead more...

CEIP TOMBATOSSALS SHOWED US ITS SOLIDARITY

Last Friday afternoon we were present at the last of the schools that were welcoming us during the week, the CEIP (pre-school and primary school) Tombatossals. There Juan Pedrajas and Mauro Segarra, grandfather and uncle of Celia respectively, had the opportunity to explain to the students the illness that our children suffer and the objectives of this association. We appreciate the interest they showed in asking questions and sensitizing themselves to the cause. In addition, two students gave us, with...

29 December, 2016By NewsRead more...