Good evening! Today, the VIII Race for Hope, organized by the Spanish Federation of Rare Diseases, has been held in Madrid to raise awareness about this type of disease and its research. We would like to thank Moisés Arévalo and Nere Serra for making us part of this important event by wearing our shirt. We have been very excited to receive these photos and feel your support and affection. From here, we encourage you all that make us visible with our...
Good evening! Today we want to inform you that next Saturday April 1 at 17:00, we will be present at the Children Villarroya Trail, in the town of Villarroya de los Pinares (Teruel). This race will serve as an opener for the competition to be held the next day, which this year celebrate its second edition. There will be races for all ages, from the smallest ones (baby category) to the children. You can also enjoy a supportive chocolate...
Good evening! Today it continues the challenge "1000 MEF2C bracelets" promoted by Salva Arco, player of C.B. Breogan. During the game the team is playnig tonight versus the Basketball Club Clavijo in the Pazo dos Deportes de Lugo, we will continue to sell our solidarity bracelets to achieve this exciting challenge. Celia's parents have wanted to thank Salva and his club with this video for the great mobilization they are getting. It is incredible the answer of the people form...
Today we announce you full of hope that yesterday it was achieved # reto1000pulseras (1000 bracelets challenge) promoted by Salva Arco! We cannot express our gratitude to Salva, C.B. Breogan and all his fans who supported us by acquiring your bracelet. You have shown us that the city of Lugo is very supportive, despite the distance that separates us the affection that we have felt has been incredible. Thank you for making us 1000 steps closer to our goal,...
Today, April 2, is the Autism Awareness World Day. The difficulty to communicate and the autistic traits are some of the characteristics of those affected by the MEF2C Syndrome. From here we want to join this day of awareness and thank all the people who help these children and their families, teaching us alternative communication systems to communicate with them. Thanks to all the therapists and speech therapists for helping us so much and with so much enthusiasm. We also...
Goodnight! Today we want to thank the people of Villarroya de los Pinares, town in Teruel, for the great welcome that gave us last Saturday on the Children Trail Villarroya de los Pinares. Despite the cold we felt the warmth of the people who showed us all their support by purchasing our bracelets and T-shirts. In addition, the raffle and the tasting of solidary chocolate were a success. Below there are some pictures with the rewarded numbers of the...
Happy Saturday! Today we would like to thank this group of students of Teaching at Universitat Jaume I , who chose our project as a theme for their work, in the subject of Education for Health taught by Professor Concha Calvo, . Alba Lengua, Cristina Lahosa, Llum Albalat, Sarai Alcaraz and Ana Belén Juan, thank you sincerely for joining our cause and giving us visibility. We obviously thank you, Concha Calvo, for supporting this initiative. It has been a very...
Good evening! More and more people show us their support from different places. Today we want to share with you a moving image that Diego Miralles, cousin of Jesus, Celia´s dad, has sent us from El Pic de Campbieil, in the French Pyrenees. There are many summits and expeditions in which he has participated, and this time he has remembered the MEF2C children and dedicated this summit to us. Thank you very much Diego. Images like this make us very...
Goodnight! Today we are excited to share that next Thursday, April 13th, music and poetry will be merged into the dELUXE pop club (Valencia) in Latintavino's solidarity recital: "La Vida Sigue". The entrance ticket for this exciting union of two arts in a love story will be € 2, and all proceeds will go to our cause. We are looking forward to meeting you on Thursday from 22:30 to enjoy a few hours of poetry, music and solidarity. You can´t...
Today we want to tell you a nice initiative that Primer Toque and Fundació Caixa Castelló have had on the occasion of the 11th Primer Toque Castellón Mediterráneo 2017 Tournament. Thanks to the effort and involvement of both entities, during the tournament which expects to gather over 6000 people, a solidarity raffle will be held for the benefit of our cause and AFANIAS CASTELLON, an organization whose purpose is to promote and encourage the protection, care and guardianship of...
