Today we are one step closer to our goal! We want to share with you our joy, since we have been able to make a second transfer of € 12,000 to Dr. Stuart Lipton's laboratory. Without the collaboration and solidarity of all of you, this second contribution would not have been possible, that´s why we want to thank you, since this money is the sum of all your contributions. It has been obtained bracelet by bracelet, with the sale of...
Once again, the people of Vilafranca del Cid (Castellón) show us their unconditional support, as we are present at the celebration in honor of Saint Cecilia, patroness of the musician. On Saturday 19th at 6:30 p.m., in the Cultural House, the "Concert of Santa Cecília 2016" will take place with performances by ""Grupo de Jota el Rolde del Maestrazgo" (Traditional dancing group) and the “Grup de Rondalla i Ball de Vilafranca" (Traditional music and dancing group). This year, they have...
Today we are pleased to announce that Pistatxo Roba Infantil (Children clothing) becomes a new point of sale for our solidarity bracelets. We appreciate this collaboration and the great support shown to our cause from the beginning. We take the opportunity to present all the MEF2C solidary products, both the ones you already know and the latest, and we also remind you of all their points of sale, which you can consult at the following link: MEF2C Product Shop. Thanks...
Yesterday the parents of Guillem and Celia were in a talk about gene therapy in Valencia, organized by Helpify (funding platform for medical research promoted by the CIMA of the University of Navarra). In her, Gloria González, director of the program of gene therapy of the CIMA (Applied Medical Study Centre), explained that this therapy is already a reality, and that it is getting the improvement and cure of rare genetic diseases. We left this talk very happy and hopeful...
Last Saturday we had a great time at the Deleste Kids, in La Rambleta, enjoying the performances of Dani Miquel and Tardor. From our stand we received the affection of all the assistants and the support to our cause. We are sure that Guillem felt that affection from all the people who attended this great event. Thank you all! We are very thankful to the Deleste Festival for giving us the opportunity to announce our project in a so well-known...
Yesterday we were in the launch ceremony of the teams of the Nou Bàsquet Femení Castelló, where we received a great welcome, receiving the affection of the entire board, the players and family members who came to this beautiful event. Celia felt the support of everybody, thank you! We would like to thank Nou Bàsquet, in particular President Lola Valls, for the opportunity they offered us to publicize our cause among all the public who gathered at the Grapa Pavilion,...
Today, on the very day of her birthday, we want to welcome Laura, this beautiful girl who, from now on, will be part of this great family. Laura, who lives in Toledo, is seven years old today, and after more than six years of misdiagnosis, last week her parents received the definitive diagnosis: an abnormality in the MEF2C gene. With her, 3 cases are known in Spain with this syndrome. As soon as they received the news, her relatives sought...
Yesterday morning, in cinemas Aragón in Valencia, the official presentation of the fifth edition of the Deleste Festival took place. During this event, Silvia Cholvi (Guillem's mother) had the opportunity to explain the objective of our association in front of the audience, who once again showed us great support and affection. As we told you a few days ago, the change of this year at the festival is that Saturday morning concerts (by the "cantacançons" Dani Miquel and the gourp...
We want to thank the company "Amigos del Teatro" (Theatre Friends) for the wonderful evening they made us spend yesterday, especially Antonio Arbeloa Garcia, who devised this beautiful initiative. Congratulations on their magnificent work "Ballad of the three innocents" who held our attention for nearly two hours and made us laugh loudly. You guys are some artists! And of course, thank you for your generosity and support for our cause. Yesterday we felt really loved by both the actors and...
Since the birth of the Deleste festival, Deleste Kids has always been one of the key pieces. In fact, it is usually an audience success. In this fifth edition, the organization once again bets on a morning session - Saturday 5 November - in which the family audience will be the protagonist in the Rambleta (Valencia). Dani Miquel and Tardor will be in charge of playing the live music on a date that this time will have a solidary...
